Hello Team KLB!
It’s been about two weeks since my surgery, so I’ll let you know how things have been going lately.
12/3 – surgery day. Waiting for surgery to happen on surgery day was the worst. Once surgery was rescheduled, I was pretty much in denial that it was happening and went along my merry way, not thinking about it AT ALL (probably not the best idea, but it was my coping mechanism of choice). Then on Monday 12/1, it started to sink in again. By Wednesday, when I woke up, I was a) thirsty as all get out and b) HUNGRY and c) ready for this to be over, but I had to wait until noon for surgery; it was going to take forever!
Once I was admitted and got all cozy in my hospital bed (NOT) the slew of nurses and doctors came through. They asked me if I was in any pain and I said hunger pain! Of course, my surgeon was running late! My plastic surgeon came by and drew all over my breasts (I still had “x’s” on my lymph nodes – from the day before) to mark where he would be making incisions. Finally, around 11:45 (I expected to be on lovely drugs by 11:30 so they could do presurgery stuff) my surgeon came by to check in, wrote on me some more and then I was finally allowed to get a relaxer drug. The rest is fuzzy. Exactly what I wanted. I semi-remember being wheeled into the OR.
Then as I’m being wheeled into the recovery room, I remember asking for water and telling them I have to pee. Little did I know that I had a catheter. After eating some ice chips in the recovery room, they wheeled me to my hospital room. We passed a male nurse that I was told would be checking on me shortly, I believe I told him hello and that I recognized him. HA! I was very drugged up, but he did look like someone I went to high school with. Jim, Jared, my mom, and Kamy were in my room! Yay! It was over. My family relayed the good the news that the preliminary results of the lymph node biopsy were negative. At the hospital they had me on morphine and norco, and I was never in much pain. Until they made me get up. Unknown to me, in the OR they put me in a stretchy tube top thing that Velcros on and off. It wasn’t velcroed and the nurse and Jim fashioned me in the tube top before I could get up. It hurt soooooo bad, as did getting up. Especially since I was not able to put any real weight on my arms or use my arms to pull me up. By the time I got up, I felt light headed and didn’t last long, so I laid back down. During the night, as I was sleeping I remember saying (to no one) “March 18, 1983”. If you’ve been to the hospital/ doctors office, you know that before they give you meds or anything at all, they scan your wrist bracelet and ask your full name and birthdate. So I was talking in my sleep as Jim can tell you I often do. Jim was in the room, but I’m not sure if heard me or not.
On Thursday, I got up a couple more times and was more successful in walking around my floor. They removed my catheter (side note here: I didn’t know that they would be working with those lady bits too and felt very unhappy without previous knowledge of this) and said I could go home once I peed. Success! I also saw both surgeons that day and they said everything went well and was looking well. My plastic surgeon said I didn’t have to wear that tube top, which was amazing news! I had been reading about bringing pillows for the car ride home, and they did make it much more comfortable. It was nice to be home and to see my doggies.
Over the past weeks, I’ve had to sleep upright on my back only or in my borrowed recliner (thanks Sarah and Kevin!!) and could only do minimal self care. The other “fun” part was the drains that you have to wear until your drainage is minimal. These help you to heal, but are annoying. They had to be emptied several times per day and I wore in a special tank top that had pockets to hold them. Yesterday (12/15) at my dr. appointment, he took the drains out. YAY!!! The right one didn’t hurt at all, the left one only hurt a little. My mom said it reminded her of when she had tendon surgery on her foot and they put a pin to hold it in place (it remained for about 6-8 weeks). When they took it out, Kamy said, “wow! that’s much longer than I thought!”. It was much longer than I thought too. I was glad to be able to take a shower yesterday!! I’m finally off of pain meds – only taking tylenol as needed and so far, I’m pretty good. The worst side effect of norco is constipation. I happen to be a very regular girl, so this has been very unpleasant. I’m starting to return to my normal self. ;0
Yesterday, during a post op appointment with my plastic surgeon, he did not fill my expanders. 🙁 He also didn’t fill them during surgery because my skin was seeming too sensitive and irritated. Because he removed the drains, he didn’t want to poke and prod me any more by filling my expanders (even though I said I was fine since the drain removal process wasn’t bad). So I continue to be a member of the ity bity titty committee, at least for another week or so (my first appointment for expansion is on next monday). I now know what it is like for the other half and can sympathize with your struggle. My clothes do not fit like I’m used to and so far, I’m not a fan. They will fill the expanders to 500 ccs of saline in either 100 cc or 50 cc increments. My plastic surgeon said for some women it’s too uncomfortable to fill 100 ccs, so 50 is the better option. Thus, it will either take 5 or 10 weeks to fill the expanders and they won’t start radiation until after they have been fully expanded. At this point he said I can begin to resume my normal activities as I feel I’m able to and that I can start to lift things that are between 5-10 pounds.
I think most of you heard my good news on Facebook, but last Monday 12/8/14, my surgeon called and asked if I wanted to hear some good news, no great news. He informed me that the lymph nodes were clear and no cancer was found. This means that the chemo was successful in killing the tumors and there wasn’t anything else lurking around. He said this was the best possible result. So as of 12/8/14 I am in remission. FUCK YES! We are all beyond excited and it’s still surreal. Christmas came early for me this year :). I saw my oncologist yesterday and he said he will continue to monitor me and see me every three months for the next five years.
Amy said I needed a new hashtag – not #cancerbabeshappydays since I no longer had cancer, she suggested #cancerfreekatiemarie and #cancerfreeklb. I love both but wanted to add the word happy in there as a nod to my earlier project #100happydays and #cancerbabeshappydays so I decided on #cancerfreehappyklb. And apparently there are some tattoos in the works for some family members to commemorate that date/my kicking cancers ass. I feel pretty honored.
As always, thanks for the flowers, meals, walking buddies, emails, calls, texts, FB messages, cards, prayers, and good energy. I love you #teamklb!